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PBCers |
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Disclaimer: The PBCers Organization is a nonprofit help and support group. We are NOT medical professionals and can not offer medical advise. The purposes of our organization is to offer support, help and friendship. The PBCers Organization membership consist of liver disease patients, family members and friends discussing their personal experiences and views, or posting information/medical articles/links they found which might be of interest to others. Information listed in our daily digests, newsletters, message boards, chat room and or website MUST NOT BE USED as medical advice or a substitute for your own health care provider. Please consult a doctor about your medical condition before making any changes in your daily living and or treatment plan. The PBCers Organization cannot be held liable in any way for information listed on our website or posted in one of our areas of support. |
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Primary Biliary Cirrhosis |
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United Through Education, Research & Support |
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The PBCers Organization is a wonderful source of education and support for those who suffer from Primary Biliary Cirrhosis and other autoimmune liver diseases. Formed December 1, 1996, the PBCers is now the largest PBC online support group with almost 3,000 members worldwide. Family members and friends are encouraged to join and learn more about PBC. We offer our members many areas of help and support, but the main support system is the PBC Daily Digest. As a group we discuss: · Medical information · Transplantation · Pain management · Medications · Research · Ask questions · Vent anger & fears · Share personal experiences · Speak freely on the ups and downs of daily living · Build lasting friendships Our main goal is that no one feel alone with PBC. April 2012 New PBC Research PBC Research Many years ago the outlook for PBC patients was grim. Very little was known about this rare disease and there was very little research. Some called PBC the Silent Killer. Today, it is no longer called the silent killer and with current medications such as Urso Forte, the future for the majority of PBC patients is not much different than those without PBC. Over the years, PBCers and researchers have joined together to learn more about PBC and its treatment. Patients now have medications and treatments to help postpone and/or stop the disease progression. There are various ongoing research projects in which many of us participate. Some of these research projects were made possible by the generous donors of the PBCers Organization. But the fight is not over. We still need to find the cause and cure for PBC, and we need your help. You can help by making others aware of PBC, by discussing this disease with your family, friends, neighbors and co-workers. Making the general public aware of PBC will also help us in raising much needed funding (funds) for research. So please help! Educate - Support - Research for PBC Copyright 2012 |
